Friday, 8/21/09 No drug yet

Our doctor's visit was canceled this week because the FDA has to approve our emergency use of the new drug. It's a day to day wait right now.

Good news is that heart test came back O.K. and that increased fluid removal has helped with breathing. Pete hasn't used oxygen in two days. If this trend continues, we'll start trying to do physical therapy to regain strength and endurance to be able to stand and walk again.

Weight is down to 174lbs. Another 10lbs. down. Very bony.

Still needs platelets every day and blood 1-2 times per week.